Saturday for terminally ill boy
child for America's dysfunctional health care system
FOR IMMEDIATE RELEASE
FOR MORE INFORMATION CONTACT
Valerie Nelson, Sun Valley Bar (775) 674-2220
Lisa Albiniano (775) 303-0606
William Albiniano, 8, needs expensive kidney treatments and
medication his family cannot afford without insurance.
ran out of his medication two weeks ago," said his
mother Lisa Albiniano.
© 2006 Debra Reid/Daily Sparks Tribune
VALLEY A local boy's struggle to live brings the community to
his aid this Saturday.
Sun Valley Bar will host a fundraiser for William Albiniano on
August 19 from 1:00 to 5:00 p.m.
The Reno eight year-old wants to be a firefighter but may not live long
enough to achieve his goal. He suffers from MPGN, a condition in which
his white blood cells attack his internal organs.
He requires several medications to slow the process and help ease his
pain, including an expensive drug normally used on patients who have
had an organ transplant.
also needs to travel to UC Davis in California for treatment each month.
Because his main drug has not been FDA approved for someone in his condition,
the manufacturer cannot give it to him free, which it can do for low-income
His family has no health insurance and is in the process of appealing
a denial of coverage by the Nevada
Checkup plan for children. 
family has skipped several house payments to foot $1,400 a month for
medicine plus expensive monthly trips to see California doctors. William
spent July 29 in Washoe Med's emergency room because his blood pressure
and heart rate were spiking.
The Sun Valley Bar is producing what owner Valerie Nelson terms
a kid-friendly event Saturday, including games, food, beverages and
prizes. The highlight will be the raffling of a Salorr kids pocket motorcycle
donated by Internet Auto Sales. The drawing will take place at 4:30
The Sun Valley Bar is located at 5544 Sun Valley Blvd.
Several dozen area businesses have put out donation jars for the family
over the past several, but little has been generated. Accounts have
been set up at Bank of America and Wells Fargo Bank.
A yard sale fundraiser has been scheduled on Sept. 9 at Dee's Used Furniture
in Sun Valley. Anyone wishing to contribute items may call (775) 771-4951
or (775) 303-0606.
Versions of the above story appeared in the 8-19-2006 Daily
Sparks Tribune and Reno
1. Nevada Checkup's recent publicity touting its
success and availability: "Nevada parents whose children are uninsured
shouldn't have to agonize over choosing between taking their child to
the doctor or putting food on the table."
KIDS: Public health care coverage available
Low-income families eligible for Medicaid, state plan
Vegas Review-Journal 8-10-2006
You may view Joe Hart's August 16 story on William by going
to KRNV.com and clicking on Special
Features at the left hand side of the page. Once there, look for
the headline entitled "HART
OF THE MATTER: Reno Family of Child with Life Threatening Disease Isn't
Getting Financial Help...Their son is battling a life threatening
illness. They can barely afford his monthly medication and they've now
fallen behind on their house payments. To top it all off, they've been
rejected by a state program designed to help people in their situation.
News 4's Joe Hart focuses on a family that refuses to give
The director of Nevada Checkup
refused to be interviewed for Mr. Hart's story. I spoke with him after
Lisa Albiniano gave him written permission to do so, as she did for
Mr. Hart. Charles Duarte said his office is awaiting (what else?)
Keep in mind
that older web browsers will probably not work to get you to the video
from the home page. You must also have Microsoft Windows Media Player
in your system. It's available for both Windows and MAC and probably
other systems at the BillGatesLand website, http://www.microsoft.com
leastways I hope so.
News Archive + How and where to donate
The above press release was prepared and distributed by Andrew
Barbano. All comments hereinabove are strictly the responsibility
of Mr. Barbano. Because of the short time frame, none of the above has
been proof-read or edited by Mss. Nelson or Albiniano, who were contacted
Be well. Raise hell. AB
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